Comments on Cora's Story: About congenital heart disease

I am a 30 year old woman, who was born with multip...

2010-07-29T19:07:55.335-07:00

I am a 30 year old woman, who was born with multiple birth defects. I have joint contractures, depression/anxiety issues, and vision and mild hearing concerns. I also have mitro-valve prolapse and aortic root dilation. My parents had no way of knowing anything was wrong until I was born. The doc and nurse would NOT show me to my parents at first.
Now I write poetry and for the past several years have been working on a book for and about people with various disabilities. Who knows? Maybe I'll write a poem based on Precious Cora's story. I write these poems to help others understand what special needs people go through. For any children reading this, if you think you have it tough in school, imagine yourself blind, deaf, in a wheelchair or on crutches. Some of us, like myself, may look normal, but have problems learning or comprehending even the simplest task. Please always keep this in mind. :)

I see you have CHIN on there, somehow I missed it!...

2010-07-10T15:09:05.647-07:00

I see you have CHIN on there, somehow I missed it! Sorry! ;)

I have just started the Children's Heart Found...

2010-07-10T15:05:34.312-07:00

I have just started the Children's Heart Foundation -- Virginia chapter, but I also wanted to say, Mended Little Hearts works in connection with the Children's Heart Foundation -- Please add a link to Mended Little Hearts. There is also the Congenital Heart Information Network (CHIN). I can't thank you enough for all you are doing to help get the word out there!

i am a nurse in the L&D and newborn nursery. i...

2010-06-02T14:50:19.754-07:00

i am a nurse in the L&D and newborn nursery. i am proud to say we do a 24hr pulse ox test. in the last several years since implemented it had never come up with any findings until last week. I happened to be the one preforming the test and the child had a type of CHD. He was rushed to a larger hospital where surgery could be preformed. all the years of not having a case were worth that one little boys life. keeping putting your story out there even though its hard. I know because I lost my little girl due to a neural tube defect. But God willing press onward.