Comments on Cora's Story: Cora's story

Meredith- Actually Maryland passed a bill first. A...

2011-06-03T11:06:54.567-07:00

Meredith- Actually Maryland passed a bill first. And, time stands still when your child dies.

Your story is one we should never have to hear aga...

2011-06-03T11:02:02.235-07:00

Your story is one we should never have to hear again. It stirs up so many emotions in me as I could have been in your shoes. My daughter was born 12/17/09 with a CHD. We were fortunate that we got her diagnosis before we left the hospital. All my thoughts and prayers are with you and your family. I know it has been some time since Cora has passed I hope you have found some peace and happiness after such an unfair and unfortunate event.

I hope you are happy to hear that the state of NJ (the FIRST in the NATION) has passed a bill mandating that all newborns be tested for CHD before leaving the hospital. I hope every other state falls in line. Hopefully another family won't have to endure what you have.
much love to you!
Meredith

http://www.nj.com/news/index.ssf/2011/06/nj_becomes_first_in_nation_to.html#incart_hbx

Thank you for sharing...I found your site after se...

2011-04-02T21:26:23.027-07:00

Thank you for sharing...I found your site after searching for how to help a friend when a child dies. Her son was 46 years old and died of cardiac arrest in her driveway. It doesn't matter how old the child is, you are still a mother or a father - and the loss breaks your heart. I will think of you and Cora...and pray for the comfort of all parents who lose a child.

i sit here with my shirt and keyboard full of tear...

2011-02-08T11:59:03.803-08:00

i sit here with my shirt and keyboard full of tears. my hearts breaks for you and your family. My son was born dec 17 2009 he has a VSD. i had no idea that CHD affects 1 in a 100 babies born... how could i not know this... the reason being there isnt enough info out there and stories like Cora's will hopefully not only get the word out there but change lives as well. there is a simple tests that all hosp can do before they let the babies go home that would detect heart problems ... I just wish that one day all hosp will make it mandatory to do. It will save lives. Gold Bless you and your family <3 Cora was sent here to teach us all something <3 She is a beautiful baby and you were blessed to have her even if just for a short time. thinking of you and saying prayers xo
Kelly

My daughter is named Cora Mae, she is 8 months old...

2011-01-10T20:33:09.340-08:00

My daughter is named Cora Mae, she is 8 months old. My thoughts will go out to you.

I think of Cora all the time, on the 6th of every ...

2010-10-04T14:01:29.555-07:00

I think of Cora all the time, on the 6th of every month my daughter Mia born Dec 10/09 wears pink for Cora. I lost my only son in 2007 although he never made it home I understand how you feel and wish you peace.

Stumbled upon your blog just now ~ Nothing I could...

2010-09-13T11:24:48.333-07:00

Stumbled upon your blog just now ~ Nothing I could say will help you but know I am praying for you, your family, and your dear Cora.

I send all the love and prayers toward you and you...

2010-09-02T06:40:50.152-07:00

I send all the love and prayers toward you and your family. My son was born w a CHD and I feel fortunate that it was detected immediately after he was born. I know that feeling of finding out something is very wrong w your child when you had a normal pregnancy and had no other indication of any issue. It's horrifying, but to loose that child is so much worse.

Be strong. Cora's story will serve as a powerful tool to help new moms protect their babies.

I want to tell you how touched I am by your story....

2010-08-24T20:57:15.448-07:00

I want to tell you how touched I am by your story. Cora was due the same day as my son Roland, and was born the day before he was. You're a remarkably strong and brave woman, and I feel honored to have been given the opportunity to read about Cora's life. May God continue to wrap his arms around you each and every day. I pray that every time the sun peeks from behind the clouds, you feel her warmth and love.

I will not forget your story sweet baby Cora. How incredibly proud you must be that your mommy and daddy are helping to save the lives of other babies.

Donna Tate

So immensely sorry for your loss. The tragic irony...

2010-08-24T12:39:44.191-07:00

So immensely sorry for your loss.
The tragic irony of the name you chose for Cora strikes me- "cor" means heart in Latin.
You are so brave to share your story. You did everything you could for Cora while she lived, and you are undoubtedly helping other babies now.
Best wishes, Sarah

Kristine, What a beautiful tribute to your dear C...

2010-08-19T14:45:37.963-07:00

Kristine,
What a beautiful tribute to your dear Cora this blog is. And what an amazing life she is still living through you and what you are doing with her memory. Upon reading your blog the thought crossed through my mind, "I don't think I'll ever visit this blog again." It is almost too heartbreaking to look at, think of, and imagine. My next thought is, "Kristine lives with this pain (and so much more than I can even fathom) every day." I agree fully with what Natalie said: "I believe with all my heart and soul that our babies were just too perfect for this fallen world. . . I also believe with all my heart that we'll have them in our arms again. Forever and ever and ever ever ever." I know that there is a reason for all that God does. There are SO MANY times I ask "WHY?" And I will never fully understand until I am with him again. For you, I cannot answer why, but I do believe that you are one of God's noble and brave ones. Just reading about the changes you and your husband made when you learned that Cora was coming makes me know you were great parents and still are wonderful parents striving to keep her memory alive in the service you do in spreading the word. Cora was too good for this world--she was one of his noble chosen ones too. You will be so rewarded in time to come when you will be reunited with Cora and God. While I will probably never meet you in this life, I hope that perhaps one day I can meet you in heaven. Perhaps our little girls can be friends.
Thank you for all you do.

2010-08-10T22:21:02.330-07:00

This comment has been removed by a blog administrator.

Just found your blog. And, first, I am truly sorr...

2010-07-28T05:52:35.112-07:00

Just found your blog. And, first, I am truly sorry your sweet baby Cora died. Truly. Second, thank you for blogging and telling your story. You are a blessing.

Rachel

After reading this, I have to go into my daughter&...

2010-07-02T23:15:59.819-07:00

After reading this, I have to go into my daughter's room and tell my 1 year old I love her dearly. Bless your heart. She is so precious and those few days you held her in your arms will forever fill your heart. Congrats on quitting smoking btw. When my sister lost my 2 month old niece, I saw how hard it was to go through such a loss. Lots of hugs.

clc_little_britches@yahoo(dot)com

My foster son died from a heart defect, while his ...

2010-06-21T15:21:10.284-07:00

My foster son died from a heart defect, while his had been caused by alcohol fetal syndrome we prayed he would be ok, but like your little girl it wasnt to be he died unexpectly and my heart broke. We also lost our own daughter in 2008 to a condition called Rett syndrome. I can not tell you it gets easier but time helps you to learn how to cope with it.
Keep doing what you are doing bringing awarness to others about hearts defects you are very brave.

My daughters website is www.livvyssmile.co.uk

feel free to email me if you ever want to talk xx

I am so sorry to hear of your loss - how sad...ver...

2010-06-08T12:51:48.004-07:00

I am so sorry to hear of your loss - how sad...very moved by Coras story. My baby boy, Thomas www.babythomas.co.uk was born still on New yrs day 2004, 8 months into my pregnancy. He also had a congenital heart defect. x

Oh...that is so sad. I feel so bad for your baby. ...

2010-05-23T15:41:41.810-07:00

Oh...that is so sad.
I feel so bad for your baby. I wish I got to meet her, and I could feed her warm milk everyday like you did. I feel so sad for Cora.

-Grace Claire (call me Glare)

An Angel with the Book of Life wrote down your swe...

2010-05-19T08:06:54.522-07:00

An Angel with the Book of Life wrote down your sweet baby girl's birthday and whispered as she closed the book, "Too Beautiful for Earth".

Stumbled upon this blog and am so moved by Cora's story. Thank you for sharing it. You and your family are in my prayers.

I just need to tell you how very sorry I am for wh...

2010-05-18T08:22:48.347-07:00

I just need to tell you how very sorry I am for what you've gone through and continue to go through. I came here through Natalie's blog. How are you doing? Are you getting through this thorny path okay? Ever since the death of our little grandson my heart hurts so very much more for those of you sweet mothers who find themselves traveling this road. My prayers are with you.

So incredibly saddened to hear of your unimaginabl...

2010-05-01T20:54:28.090-07:00

So incredibly saddened to hear of your unimaginable loss, yet inspired by the wonderful tribute to her life in helping save other babies. You are amazing, just like Cora!

My heart is breaking as I am writing this. I could...

2010-04-16T08:29:36.895-07:00

My heart is breaking as I am writing this. I could never imagine going through what you have gone through. My daughter is 12 weeks and I couldn't imagine the pain you are going through. I am so sorry for your loss. Cora will always be a memory to me, even though I never met her.

I am so sorry for your loss. I could not imagine w...

2010-04-14T10:47:39.761-07:00

I am so sorry for your loss. I could not imagine what you have been through. My son was born with PDA, a CHD that almost went undiagnosed until i left a bad pediatrician for a good one. We were immediately went for heart tests and monitored closely until his heart was fixed at 13 months. I know how close i was to losing him and know how lucky i am to have him every single moment. you will be in my prayers! your strength is beyond imaginable and I admire how you have turned a horrible tragedy into something to help others. Cora will alwyas be a part of you and a part of the hearts of all who knew her!
Tessa

I have tweeted you before, but Cora is forever you...

2010-04-08T16:17:59.297-07:00

I have tweeted you before, but Cora is forever yours, no matter what, she us now in your heart & on your shoulder watching you, guiding you, cheering you on!! Keep up the Fight for Cora, & other lil ones like her, who might not otherwise have had thf chance..you & Cora..will go far!! She is your brightest star!! Love her with all your might mama, she's your daughter, feel angry, sad, mad, glad, proud, everything you want & need to feel..is ok.. we love you, we love Cora-my great grammy's name btw!!

I'm so sorry to hear about your daughter she i...

2010-03-29T09:35:07.443-07:00

I'm so sorry to hear about your daughter she is so stinkin cute. Yes I can agree with u the dr.'s should do the test about CHD so this don't happen.

Our hearts go out to u guys i had the similar thin...

2010-03-24T08:46:15.782-07:00

Our hearts go out to u guys i had the similar thing gr8 pregnancy not an easy labour 36hrs was hard but we did it in the end i was takin to the ward after i had mia (my daughter) very happy and thought we wud b home the nxt day =( following mornin thy cudnt get a pulse readin so she had to b rushin up to intensive care were she remained for 3 wks and no 1 nw wat was rong with her thy lets us go after all tht time and had an emergancy call frm the doc to bring her bk mia was home for 6 days thn booked bk in the hospital for another 2wks basically diein, we had a call from a specialist at a top hospital a couple of wks later were thy new wat was rong with her in the matter of seconds she was operated on the nxt day and recovered very wel she has had another op since thn and we pary there wi b no more it is very scary and i didnt think things like this were real but thy r and my heart goes out to u WELL DONE 4 wat u have done and keep up the good wrk: check out mias website if u wud like 2 its,
Mialeightonjones.co.uk
take care hunni
all the best ove claire & mia xxx